Source: http://www.CSFinfo.org / http://www.CSFinfo.org
Unite@night supports local CSF Chapters, as well as large-scale research and education projects to benefit the over one million families in the United States alone, who suffer everyday from Chiari malformation, syringomyelia and related disorders.
unite@night is a one-mile, casual evening walk in various locations around the country (and the world!) during the month of June. These walks bring together people who are suffering from the devastating effects of Chiari, syringomyelia, and related disorders. You only need to walk as far, and raise as much as you can. Every step and every dollar counts!
Don’t forget to bring your awareness colors to the walk– whether it’s purple for Chiari, blue for syringomyelia, zebra for Ehlers-Danlos Syndrome, and so on… Let’s paint these walk sites with awareness colors!!
The 2015 unite@night is going to help the over one million families who are putting together the puzzle that is Chiari, syringomyelia, and related disorders, including Ehlers-Danlos syndrome, hydrocephalus, postural orthostatic tachycardia syndrome (POTS), idiopathic intracranial hypertension, dysautonomia, and many more!
The walk is held June 27th, 2015 at Kitty Hollow Park, Pavilion E. Registration starts at 5PM and the walks begins at 6PM. We hope to see you there.
